University of Oulu

Lahdenne, P., Aalto, K., Rebane, K. et al. Rheumatol Int (2018) 38(Suppl 1): 179. https://doi.org/10.1007/s00296-018-3950-3

The Finnish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

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Author: Lahdenne, Pekka1; Aalto, Kristiina1; Rebane, Katariina1;
Organizations: 1Pediatric Rheumatology, Children’s Hospital, Helsinki University Central Hospital
2Department of Pediatrics, PEDEGO Research Unit, Medical Research Center, Oulu University Hospital and University of Oulu
3Department of Pediatrics, Turku University Hospital
4Department of Pediatrics, Tampere University Hospital
5Department of Pediatrics, Kuopio University Hospital
6Department of Pediatric and Adolescent Medicine, Orton Research Institute
7Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini
8Dipartimento di Pediatria, Università di Genova
Format: article
Version: published version
Access: open
Online Access: PDF Full Text (PDF, 0.6 MB)
Persistent link: http://urn.fi/urn:nbn:fi-fe2018051824202
Language: English
Published: Springer Nature, 2018
Publish Date: 2018-05-18
Description:

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Finnish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 173 JIA patients (1.2% systemic, 46.2% oligoarticular, 39.9% RF-negative polyarthritis, 12.7% other categories) and 100 healthy children, were enrolled in five paediatric rheumatology centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Finnish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

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Series: Rheumatology international
ISSN: 0172-8172
ISSN-E: 1437-160X
ISSN-L: 0172-8172
Volume: 38
Issue: Supplement 1
Pages: 179 - 186
DOI: 10.1007/s00296-018-3950-3
OADOI: https://oadoi.org/10.1007/s00296-018-3950-3
Type of Publication: A1 Journal article – refereed
Field of Science: 3121 Internal medicine
Subjects:
Funding: Funding was provided by the Istituto G. Gaslini, Genoa (Italy).
Copyright information: © The Author(s) 2018. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
  https://creativecommons.org/licenses/by/4.0/