University of Oulu

Karampela, M., Grundstrom, C., & Isomursu M. (2018). Personal Health Data: Accessibility and Value in a Danish Context. In B. Andersson, B. Johansson, S. Carlsson, C. Barry, M. Lang, H. Linger, & C. Schneider (Eds.), Designing Digitalization (ISD2018 Proceedings). Lund, Sweden: Lund University. ISBN: 978-91-7753-876-9.

Personal health data : accessibility and value in a Danish context

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Author: Karampela, Maria1; Grundstrom, Casandra2; Isomursu, Minna1
Organizations: 1IT-University of Copenhagen, Denmark
2University of Oulu, Finland
Format: article
Version: published version
Access: open
Online Access: PDF Full Text (PDF, 0.1 MB)
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Language: English
Published: Lund University, 2018
Publish Date: 2019-09-09


The rapidly-evolving digital life of individuals has led to an increasing amount of personal health data (PHD) that are stored across various databases. This study aims to examine challenges encountered by healthy participants while accessing their PHD and to discuss how this knowledge can be used for the creation of future healthcare services. The participants were tasked to find and access their PHD. Thematic analysis of semi-structured interviews and journaling were the methodologies to examine participants’ experience of accessing their PHD, and the perceived value of data. Our findings point out that the participants felt that PHD are accessible through services, nevertheless accessing of PHD were found to be a laborious task. Participants were disappointed by the experience of using various interfaces of the services. The perceived value of PHD was found to be dependent on the usability and personalisation features of the services, rather than on the data itself.

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ISBN: 978-91-7753-876-9
Pages: 1 - 11
Host publication: Information Systems Development: Designing Digitalization (ISD2018 Proceedings), Lund University, Sweden, August 22-24, 2018
Host publication editor: Andersson, B.
Johansson, B.
Carlsson, S.
Barry, C.
Lang, M.
Linger, H.
Schneider, C.
Conference: International Conference on Information Systems Development
Type of Publication: A4 Article in conference proceedings
Field of Science: 113 Computer and information sciences
Funding: Author C.G. has received funding from the European Union's Horizon 2020 research and innovation programme - Marie Sklodowska -Curie Actions Grant Agreement No. 676201 - CHESS - Connected Health Early Stage Researcher Support System.
EU Grant Number: (676201) CHESS - Connected Health Early Stage Researcher Support System
Copyright information: © 2018 The Authors.