Karampela, M., Grundstrom, C., & Isomursu M. (2018). Personal Health Data: Accessibility and Value in a Danish Context. In B. Andersson, B. Johansson, S. Carlsson, C. Barry, M. Lang, H. Linger, & C. Schneider (Eds.), Designing Digitalization (ISD2018 Proceedings). Lund, Sweden: Lund University. ISBN: 978-91-7753-876-9. http://aisel.aisnet.org/isd2014/proceedings2018/eHealth/7
Personal health data : accessibility and value in a Danish context
|Author:||Karampela, Maria1; Grundstrom, Casandra2; Isomursu, Minna1|
1IT-University of Copenhagen, Denmark
2University of Oulu, Finland
|Online Access:||PDF Full Text (PDF, 0.1 MB)|
|Persistent link:|| http://urn.fi/urn:nbn:fi-fe2019090927461
|Publish Date:|| 2019-09-09
The rapidly-evolving digital life of individuals has led to an increasing amount of personal health data (PHD) that are stored across various databases. This study aims to examine challenges encountered by healthy participants while accessing their PHD and to discuss how this knowledge can be used for the creation of future healthcare services. The participants were tasked to find and access their PHD. Thematic analysis of semi-structured interviews and journaling were the methodologies to examine participants’ experience of accessing their PHD, and the perceived value of data. Our findings point out that the participants felt that PHD are accessible through services, nevertheless accessing of PHD were found to be a laborious task. Participants were disappointed by the experience of using various interfaces of the services. The perceived value of PHD was found to be dependent on the usability and personalisation features of the services, rather than on the data itself.
|Pages:||1 - 11|
Information Systems Development: Designing Digitalization (ISD2018 Proceedings), Lund University, Sweden, August 22-24, 2018
|Host publication editor:||
International Conference on Information Systems Development
|Type of Publication:||
A4 Article in conference proceedings
|Field of Science:||
113 Computer and information sciences
Author C.G. has received funding from the European Union's Horizon 2020 research and innovation programme - Marie Sklodowska -Curie Actions Grant Agreement No. 676201 - CHESS - Connected Health Early Stage Researcher Support System.
|EU Grant Number:||
(676201) CHESS - Connected Health Early Stage Researcher Support System
© 2018 The Authors.