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Health, functioning and accessibility among spinal cord injury population in Finland : protocol for the FinSCI study |
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| Author: | Tallqvist, Susanna1,2; Anttila, Heidi3; Kallinen, Mauri4,5; |
| Organizations: |
1University of Helsinki, Faculty of Medicine 2The Finnish Association of People with Physical Disabilities, Helsinki 3The National Institute for Health and Welfare, Welfare Department, Ageing, Disability and Functioning Unit
4Central Finland Central Hospital, Rehabilitation Department, Jyväskylä
5Center for Life Course Epidemiology Research, University of Oulu, Oulu 6Tampere University Hospital, Department of Neurosciences and Rehabilitation, Tampere 7Helsinki University Hospital, Department of Internal Medicine and Rehabilitation/Spinal Cord Injury Outpatient Clinic, Helsinki 8Oulu University Hospital, Department of Medical Rehabilitation/Spinal Cord Injury Outpatient Clinic, Oulu 9The Finnish Association of Spinal Cord Injured Akson, Helsinki 10Seinäjoki Central Hospital, Department of Rehabilitation, Seinäjoki 11Validia Rehabilitation, Helsinki, Finland |
| Format: | article |
| Version: | published version |
| Access: | open |
| Online Access: | PDF Full Text (PDF, 0.4 MB) |
| Persistent link: | http://urn.fi/urn:nbn:fi-fe202003279476 |
| Language: | English |
| Published: |
Foundation for Rehabilitation Information,
2019
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| Publish Date: | 2020-03-27 |
| Description: |
AbstractBackground and purpose: The purpose of the Finnish Spinal Cord Injury Study (FinSCI) is to identify factors related to the health and functioning of people with spinal cord injury, their challenges with accessibility, and how such factors are interconnected. The International Classification of Functioning, Disability and Health (ICF) is used as a structured framework in the study. Design: Protocol of mixed methods study. Results: Study participants were recruited from all 3 SCI outpatient clinics in Finland. The final target group consists of 1,789 subjects with spinal cord injury. The final questionnaire was formed from 5 different patient-reported instruments. The spinal cord injury-specified instruments are the Spinal Cord Injury Secondary Condition Scale, the Spinal Cord Independence Measure, and the Nottwil Environmental Factors Inventory Short Form. In addition, questions from the following generic instruments were chosen after a selection process: the Patient-Reported Outcomes Measurement Information System, PROMIS®, and the National Study of Health, Well-being and Service, FinSote. Altogether, the final questionnaire covers 64 ICF categories and consists of 151 ICF-linked questions. Conclusion: The formulated questionnaire covers widely different aspects of health, functioning and accessibility. The questionnaire results and subsequent interviews will help in developing care and rehabilitation policies and services for people with spinal cord injury. see all
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| Series: |
Journal of rehabilitation medicine |
| ISSN: | 1650-1977 |
| ISSN-E: | 1651-2081 |
| ISSN-L: | 1650-1977 |
| Volume: | 51 |
| Issue: | 4 |
| Pages: | 273 - 280 |
| DOI: | 10.2340/16501977-2539 |
| OADOI: | https://oadoi.org/10.2340/16501977-2539 |
| Type of Publication: |
A1 Journal article – refereed |
| Field of Science: |
3121 General medicine, internal medicine and other clinical medicine |
| Subjects: | |
| Funding: |
This study was supported by the Finnish Association of People with Physical Disabilities (2017-2019), Oulu University Hospital (grant VTR 2017), Department of Internal Medicine and Rehabilitation, Helsinki University Hospital (grants HUS/53/2017 §9, 9.6.2017 and HUS/76/2018 § 11, 18.4.2018), and Validia Rehabilitation (grant HUS-VTR 9.3.2017) |
| Copyright information: |
This is an open access article under the CC BY-NC license. www.medicaljournals.se/jrm. Journal Compilation © 2019 Foundation of Rehabilitation Information. ISSN 1650-1977. |
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https://creativecommons.org/licenses/by-nc/4.0/ |