University of Oulu

Bejarano-Martín, Á., Canal-Bedia, R., Magán-Maganto, M. et al. Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives. J Autism Dev Disord (2019).

Early detection, diagnosis and intervention services for young children with autism spectrum disorder in the European Union (ASDEU) : family and professional perspectives

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Author: Bejarano-Martin, Alvaro1; Canal-Bedia, Ricardo1; Magan-Maganto, Maria1;
Organizations: 1Univ Salamanca, Fac Educ, Ctr Atenc Integral Autismo INFOAUTISMO, E-37008 Salamanca, Spain.
2Johannes Kepler Univ Linz, Res Inst Dev Med, Linz, Austria.
3Dublin City Univ, Sch Nursing & Human Sci, Dublin, Ireland.
4Canary Isl Fdn Hlth Res Fdn Canaria Invest Sanita, Tenerife, Spain.
5Hlth Serv Res Network Chron Dis Red Invest Serv S, Tenerife, Spain.
6Univ Ghent, Dept Expt Clin & Hlth Psychol, Ghent, Belgium.
7Lundbeck Fdn Initiat Integrat Psychiat Res, iPSYCH, Aarhus, Denmark.
8Aarhus Univ, Dept Econ & Business, Natl Ctr Register Based Res, Aarhus, Denmark.
9Aarhus Univ, Dept Publ Hlth, Aarhus, Denmark.
10Univ Pisa, Dept Clin & Expt Med, Pisa, Italy.
11IRCCS Stella Maris Fdn, Pisa, Italy.
12Ist Super Sanita, Res Coordinat & Support Serv, Viale Regina Elena 299, I-00161 Rome, Italy.
13Univ Oulu, Oulu, Finland.
14Oulu Univ Hosp, Oulu, Finland.
15Univ Oulu, Child Language Res Ctr, Fac Humanities, Logoped, Oulu, Finland.
16State Diagnost & Counselling Ctr, Kopavogur, Iceland.
17Victor Babes Natl Inst Pathol, Bucharest, Romania.
18Inst Nacl Saude Doutor Ricardo Jorge, P-1649016 Lisbon, Portugal.
19Univ Toulouse Jean Jaures, CERPPS, Toulouse, France.
20Med Univ Vienna, Dept Child & Adolescent Psychiat, Vienna, Austria.
21Univ Med Ctr Gottingen, Dept Child & Adolescent Psychiat & Psychotherapy, Gottingen, Germany.
22Univ Warsaw, Fac Psychol, Warsaw, Poland.
23Natl Autist Soc NAS, London, England.
24IIER, Inst Rare Dis Res, Madrid 28029, Spain.
25Carlos III Inst Hlth, CIBERER, Consortium Biomed Res Rare Dis, Madrid 28029, Spain.
Format: article
Version: accepted version
Access: open
Online Access: PDF Full Text (PDF, 2.5 MB)
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Language: English
Published: Springer Nature, 2020
Publish Date: 2020-10-12


Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents’ opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child’s age, delays in accessing services, and active stakeholders’ participation when looking to improve services.

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Series: Journal of autism and developmental disorders
ISSN: 0162-3257
ISSN-E: 1573-3432
ISSN-L: 0162-3257
Volume: In press
DOI: 10.1007/s10803-019-04253-0
Type of Publication: A1 Journal article – refereed
Field of Science: 3123 Gynaecology and paediatrics
3124 Neurology and psychiatry
Funding: This study was funded by the Spanish Ministry of Economy and Competitiveness [Grant PSI2016-80575-R], the European Union, DGSANCO, [Ref.: SANCO/2014/C2/035], and the Spanish Ministry of Education, Culture and Sport [Ref.: BOE-B-2017-2646].
Copyright information: © Springer Science+Business Media, LLC, part of Springer Nature 2019. This is a post-peer-review, pre-copyedit version of an article published in J Autism Dev Disord. The final authenticated version is available online at