University of Oulu

Maria Lindholm, A. Reiman & M. Keväjärvi (2022) Safety and health challenges affecting the informal caregivers of children, Nordic Social Work Research, 12:4, 506-522, DOI: 10.1080/2156857X.2020.1838941

Safety and health challenges affecting the informal caregivers of children

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Author: Lindholm, Maria1; Reiman, A.1; Keväjärvi, M.1,2
Organizations: 1Industrial Engineering and Management, University of Oulu, Oulu, Finland
2Kontinkangas Unit, Oulu Vocational College, Oulu, Finland
Format: article
Version: accepted version
Access: open
Online Access: PDF Full Text (PDF, 0.4 MB)
Persistent link:
Language: English
Published: Informa, 2022
Publish Date: 2021-05-19


Informal caregiving of children with special needs is a complex entity with a mixture of different caregiving tasks performed on a regular basis. This study is focused on the perceptions of the safety and health challenges of the informal caregivers of children with special needs in Finland. An in-depth analysis was conducted on data collected from 25 qualitative interviews. The main safety and health challenges that emerged from the data analysis included issues with caregiving arrangements and related bureaucracy, anxiety because of the financial situation they are in, uncertainty on certain caregiving tasks and constant worry about the child’s health. The informal caregivers are tired, endure children’s aggressive behaviour and have physical discomfort and stress. Informal caregiving is discussed in the context of work system theory and recommendations for future studies are presented. The results indicated the need to understand better the challenges confronted in informal caregiving in order to develop practices, services and policies for the informal caregivers of children.

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Series: Nordic social work research
ISSN: 2156-857X
ISSN-E: 2156-8588
ISSN-L: 2156-857X
Volume: 12
Issue: 4
Pages: 506 - 522
DOI: 10.1080/2156857X.2020.1838941
Type of Publication: A1 Journal article – refereed
Field of Science: 222 Other engineering and technologies
5142 Social policy
Funding: This study was supported by The Foundation for Municipal Development sr. is a Finnish foundation.
Copyright information: © Informa UK Limited, trading as Taylor & Francis Group. This is an Accepted Manuscript of an article published by Taylor & Francis in Nordic Social Work Research on 26 Oct 2020, available online: