University of Oulu

Haapea, Marianne; Isohanni, Matti; Jääskeläinen, Erika; Veijola, Juha; Miettunen, Jouko (2020) Using home recruitment to increase participation and representativeness in research among individuals with psychosis. Psychiatria Fennica 51, 108-121,

Using home recruitment to increase participation and representativeness in research among individuals with psychosis

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Author: Haapea, Marianne1,2,3,4; Isohanni, Matti1; Jääskeläinen, Erika1,2,3;
Organizations: 1Center for Life Course Health Research, University of Oulu, Oulu, Finland
2Department of Psychiatry, Oulu University Hospital, Oulu, Finland
3Medical Research Center, Oulu University Hospital and University of Oulu, Oulu, Finland
4Department of Diagnostic Radiology, Oulu University Hospital, Oulu, Finland
Format: article
Version: published version
Access: open
Online Access: PDF Full Text (PDF, 0.7 MB)
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Language: English
Published: Psykiatrian Tutkimussäätiö, 2020
Publish Date: 2021-11-26


The participation rates in epidemiologic cohort studies have declined in recent decades. We aimed to evaluate the effect of home recruitment on participation rate and non-response bias within the individuals with psychosis in a follow-up study. The baseline (1999–2001) and follow-up (2008–2010) studies in the Northern Finland Birth Cohort 1966 consisted of magnetic resonance imaging of the brain, cognitive testing and psychiatric assessment. The participation rates were 67% (54/81) for baseline participants, 10% (5/49) for baseline non-participants and 35% (48/136) for those who were diagnosed with a psychosis after the baseline study. In order to increase participation of the individuals who had participated at the baseline (n=81), those who would not have participated otherwise were offered to be interviewed at home. Altogether 18 follow-up participants were home-recruited. Several illness-related variables were compared between the home-recruited participants, standard protocol participants and non-participants. The home-recruited participants had more symptoms, lower functioning, cognition and total grey matter volume, and higher use of antipsychotics measured at baseline (absolute values of effect sizes 0.60-1.05), compared to standard protocol participants and non-participants. The same differences occurred between the home-recruited and standard protocol participants in the follow-up. By using home recruitment we were able to increase the participation rate and to avoid problems of non-response bias. Effective recruitment may need special efforts in population-based studies for individuals with psychosis.

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Series: Psychiatria Fennica
ISSN: 2489-6152
ISSN-E: 2489-6152
ISSN-L: 2489-6152
Volume: 51
Pages: 108 - 121
Type of Publication: A1 Journal article – refereed
Field of Science: 3124 Neurology and psychiatry
Funding: This work was supported by the grants from the Academy of Finland (grant numbers 268336 and 316563), the Sigrid Jusélius Foundation, the Jalmari and Rauha Ahokas Foundation, the Juho Vainio Foundation, and the NARSAD: Brain and Behaviour Research Fund (Dr Mortimer D. Sackler Developmental Psychobiology Research Programme). These foundations provided no input into the analyses or presentation of these data.
Academy of Finland Grant Number: 268336
Detailed Information: 268336 (Academy of Finland Funding decision)
316563 (Academy of Finland Funding decision)
Copyright information: © The Author(s) 2020. Psychiatria Fennica uses an open access policy with an open license (Creative Commons) allowing for immediate free access to the work and permitting any user to read, download, copy, distribute, print, search, or link to the full texts of articles, crawl them for indexing, pass them as data to software, or use them for any other lawful purpose.