University of Oulu

Micai, M., Ciaramella, A., Salvitti, T. et al. Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals’ Experiences. J Autism Dev Disord 52, 1623–1639 (2022). https://doi.org/10.1007/s10803-021-05038-0

Intervention services for autistic adults : an ASDEU study of autistic adults, carers, and professionals’ experiences

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Author: Micai, Martina1; Ciaramella, Antonio1; Salvitti, Tommaso1;
Organizations: 1Ist Super Sanita, Res Coordinat & Support Serv, Viale Regina Elena 299, I-00161 Rome, Italy.
2Univ Med Ctr Gottingen, Dept Child & Adolescent Psychiat & Psychotherapy, Gottingen, Germany.
3Med Univ Vienna, Dept Child & Adolescent Psychiat & Psychotherapy, Vienna, Austria.
4Inst Rare Dis, Plovdiv, Bulgaria.
5Med Univ Plovdiv, Dept Social Med & Publ Hlth, Fac Publ Hlth, Plovdiv, Bulgaria.
6Univ Toulouse Jean Jaures, CERPPS, Toulouse, Occitanie, France.
7Dublin City Univ, Sch Nursing, Psychotherapy & Community Hlth, Dublin, Ireland.
8State Diagnost & Counselling Ctr, IS-200 Kopavogur, Iceland.
9Clinic of Child Psychiatry, University and University Hospital of Oulu, Oulu, Finland
10Medical Faculty, Oulu University, Oulu, Finland
11Logopedic Child Language Research Center, University of Oulu, Oulu, Finland
12Finnish Inst Hlth & Welf, Helsinki, Uusimaa, Finland.
13Univ Turku, Res Ctr Child Psychiat, Turku, Finland.
14Karolinska Inst, Dept Neurobiol Care Sci & Soc, Div Family Med, Stockholm, Sweden.
15Finnish Assoc Autism & Aspergers Syndrome, Helsinki, Uusimaa, Finland.
16Univ Helsinki, Dept Psychiat, Helsinki, Finland.
17Univ Warsaw, Fac Psychol, Warsaw, Poland.
18Inst Nacl Saude Doutor Ricardo Jorge, Ctr Biodivers Funct & Integrat Genom, Lisbon, Portugal.
19Victor Babes Natl Inst Res, Dev Pathol & Biomed Sci, Timisoara, Romania.
20Natl Autist Soc, Ctr Autism, London, England.
21Comunidad Univ Salamanca, INICO Inst Univ Integrac, Dept Personalidad Evaluac & Tratamiento Psicol, Salamanca, Spain.
22Comunidad Univ Salamanca, INICO Inst Univ Integrac, Dept Psicol Evolut & Educ, Salamanca, Spain.
23Inst Salud Carlos III, Inst Rare Dis Res, Madrid, Spain.
24Kings Coll London, Inst Psychiat, London, England.
25Aarhus Univ, Dept Publ Hlth, Aarhus, Denmark.
26Lundbeck Fdn Initiat Integrat Psychiat Res, iPSYCH, Aarhus, Denmark.
27Aarhus Univ, Natl Ctr Register Based Res, Dept Econ & Business, Aarhus, Denmark.
Format: article
Version: published version
Access: open
Online Access: PDF Full Text (PDF, 0.7 MB)
Persistent link: http://urn.fi/urn:nbn:fi-fe2022080452800
Language: English
Published: Springer Nature, 2022
Publish Date: 2022-08-04
Description:

Abstract

The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services’ use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults.

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Series: Journal of autism and developmental disorders
ISSN: 0162-3257
ISSN-E: 1573-3432
ISSN-L: 0162-3257
Volume: 52
Issue: 4
Pages: 1623 - 1639
DOI: 10.1007/s10803-021-05038-0
OADOI: https://oadoi.org/10.1007/s10803-021-05038-0
Type of Publication: A1 Journal article – refereed
Field of Science: 3124 Neurology and psychiatry
Subjects:
Funding: We are grateful to all participants who contributed to our study. This study was funded by the European Parliament and managed by the European Union, DGSANCO, [Ref.: SANCO/2014/C2/035]. The Italian Ministry of Health projects "Osservatorio Italiano per il monitoraggio dei disturbi dello spettro autistico" (Fasc. 1S49) and ‘I disturbi dello spettro autistico: attività previste dal decreto ministeriale del 30.12.2016′ (Fasc. 2S57) granted the contribution of the Italian data.
Dataset Reference: The online version contains supplementary material available at https://doi.org/10.1007/s10803-021-05038-0.
  https://doi.org/10.1007/s10803-021-05038-0
Copyright information: © The Author(s) 2021. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.
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