University of Oulu

A latent class approach : characterizing the willingness to share personal health information in Finland

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Author: Kiihamäki, Simo-Pekka1
Organizations: 1University of Oulu, Oulu Business School, Department of Marketing, Marketing
Format: ebook
Version: published version
Access: open
Online Access: PDF Full Text (PDF, 1.1 MB)
Pages: 52
Persistent link:
Language: English
Published: Oulu : S.-P. Kiihamäki, 2019
Publish Date: 2019-08-26
Thesis type: Master's thesis
Tutor: Juntunen, Jouni
Reviewer: Juga, Jari
Juntunen, Jouni


BACKGROUND: With the fast advances in technology, the aging populations, and the climate change, the amount of data in our hands has become enormous, and the ways of handling it has become better. There has been large amount of privacy concerns as well due to the fast-growing data that are spread everywhere. This study focuses on health data to find out whether personal characteristics can be associated with the willingness to consent it for secondary purposes.

METHODS: A sample data (n=2338) concerning the Finnish populations attitudes towards secondary uses of health data was acquired and analyzed. The questionnaire included 14 questions regarding the willingness to consent data for different purposes. The dimensionality of this issue was reduced with a latent class analysis, and the information was condensed into one latent variable with 5 classes. After that a latent class regression was performed to find out whether the willingness could be explained with the help of other background information.

RESULTS: A statistically significant association between the willingness to consent health data and the following characteristics; Gender, Age, Education, Perception of health, Number of visits to health or social care, and Financial situation. Political orientation had a high value of estimate, but no significance.

CONCLUSIONS: Secondary uses of health data can achieve improvements in public health and welfare and health equality. Therefore, it is important that we make sure that the privacy concerns of using and sharing health data are taken care of. Methods for increasing the citizens willingness to consent their health data could be done through education and by building mutual trust between the health care system and the patients.

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Copyright information: © Simo-Pekka Kiihamäki, 2019. This publication is copyrighted. You may download, display and print it for your own personal use. Commercial use is prohibited.